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Meet Viv: an AI character fostering companionship for people with dementia

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Chatting with Viv.
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Meet Viv: an AI character fostering companionship for people with dementia

 

UNSW Sydney

With a view to improving the lives of people living with dementia, UNSW researchers have come up with a world-first: an AI driven companion. 

Viv is candid about the “rollercoaster” of living with dementia. She speaks gently. “It can be confusing and disorienting and at times downright scary, but there are also beautiful moments of connection and joy amidst the challenges,” she says.

“Those moments of connection … They are truly precious. You see even though my memory may fail me at times, the heart remembers.”

In 2022, the AIHW estimated that there were 401,300 Australians living with dementia. It is a growing issue in health and aged care in Australia that has significant impact on quality of life for people living with dementia and for their family and friends.

Viv’s experience reflects that of many people living with dementia with one significant difference. Viv is an artificially intelligent (AI) character. She is part of a suite of digital characters being developed by the fEEL ARC Laureate Lab at UNSW Sydney to foster companionship for people living with dementia.

Viv and Friends was co-created with women living with dementia – using their words, insights and experiences – to empathically understand the experience of dementia diagnosis and living with hallucinations,” says Dr Gail Kenning, a lead researcher from fEEL. Dr Kenning’s research examines how creativity can support health and wellbeing, with a particular focus on ageing and dementia.

“Like the women who co-created her, Viv experiences various dementia-related symptoms. She is insightful and reflective, finding her way in the world, living her life and coming to terms with neurological change.

“The companion characters can talk peer to peer about dementia or because they’re AI-driven, they can be programmed to share a person’s interests. So, Viv could talk to them about gardening, for example,” she says. “They can also help calm people if they are overstimulated or emotionally dysregulated or motivate them if they are feeling apathetic.”

“The companion characters can talk peer to peer about dementia,” says Dr Kenning. “They can also help calm people if they are overstimulated or emotionally dysregulated.”

The origins of Viv

Co-designing arts-based interventions with and for people with lived experience is central to the fEEL Lab’s ethos. Led by ARC Laureate Scientia Professor Jill Bennett, it brings together specialists in immersive media, participatory design, trauma studies and psychology to explore the embodied subjective experiences of trauma and ageing.

Viv first came to life as a digital character based on four women with similar symptoms of vascular dementia.

“Originally, she was an audio-visual artwork who helped people understand dementia by drawing them into her story. And then she became a teaching tool for professionals working with people with dementia. And, now using AI character engine technology, like that developed for game design, Viv can interact with people in real-time,” says Prof. Bennett.

The Viv and Friends series, co-designed by fEEL research fellow Volker Kuchelmeister, builds on the kinds of connections we forge with characters on television series, Dr Kenning says. “Research has shown that people can develop socio-emotional bonds with characters that can affect their moods and behaviours in much the same way as direct, interpersonal contact can,” she says.

However, the fast pace and complex storylines of television can prove an obstacle for people living with dementia, she says. “Viv and Friends speak slowly, they are patient and unfazed by repetitious conversations, allowing people living with dementia to easily engage.”

While person-to-person contact is ideal, many people living in aged care have limited opportunities for social connection, she says. The companion characters are designed to enable meaningful communication and connection and help to combat feelings of isolation and loneliness through the simple pleasure of sharing a conversation or having a laugh.

Chatting with Viv.

Chatting with Viv.

A profound impact

“The characters don’t just provide companionship, they can also help with co-regulating emotion, as would happen with a human companion,” says Prof. Bennett. “This is very helpful when people living with dementia experience confusion or hallucinations.

One potential positive effect we envisage is in terms of offering a calming and soothing response when people are anxious or distressed. Without a calming or reassuring companion people may simply be offered sedating medication. This is a big window to provide the kind of emotional support that can help people manage anxiety through a relationship with an AI companion.”

And while some people express concern that the characters are being created to replace human relationships, that could never be the case, says Prof. Bennett. “They could never replace relationships people have with their children, or spouses. But they could do things your son or daughter isn’t present to do or doesn’t have the patience to do. And you could ask them questions or say things to them you would never say to your kids, a function many might appreciate.”

The future

Dr Kenning is currently taking Viv into a number of aged-care centres – both on a life-sized portrait screen and on iPads – to continue to explore ways Viv can be part of providing psycho-social support for those living with dementia.

“As screens are already available in both common spaces and private rooms in aged-care facilities, Viv will be well positioned to interact with the people living there,” says Dr Kenning.

“We will continue to develop Viv in the context of the space, including looking at ways that she can ground people in the moment within the rhythms of life in aged care, letting people know when it’s time for tea, or a meal, and the like,” says Dr Kenning.

Previously the focus on AI in aged care has been personalisation, but more recent research suggests that what’s important is a sense of connection.

“Viv’s ability to respond or join in a conversation is a powerful psycho-social support, and we are now starting the process of creating a male character, and others to expand the potential of Viv and Friends to improve the lives of those living with dementia,” says Dr Kenning.

The fEEL team are also creating companion characters to support people living with other diagnoses, including Huntington’s Disease.

 

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Vape Laws Spark Opposition

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Vape Laws Spark Opposition

 

Queuing at local pharmacies is expected to become longer and more complex due to new laws permitting pharmacies to sell e-cigarettes, commonly known as vapes.

As of 1 July, pharmacies are the sole legal dispensers of nicotine-containing vapes. Initially, customers will need a prescription to purchase these products, but starting 1 October, adults will be able to buy them after a consultation with the pharmacist.

However, the new legislation has sparked significant opposition from many pharmacy chains and independent chemists. The Pharmacy Guild of Australia has strongly criticised the move, describing the expectation for pharmacists to retail vapes as “insulting.”

“Pharmacists are healthcare professionals, and community pharmacies do not want to supply this potentially harmful, highly addictive product without a prescription,” stated Anthony Tassone, the guild’s national vice-president. Tassone also emphasised that vaping products have not been approved by the Therapeutic Goods Administration (TGA) and no nicotine-containing vape is listed on the Australian Register of Therapeutic Goods.

The controversial laws were passed by Parliament following a compromise between Labor and the Greens. Beginning 1 October, pharmacists who opt to sell vapes will be able to provide them to customers aged 18 or over with proper ID but without requiring a prescription, as nicotine vapes will be reclassified from schedule 4 to schedule 3 of the poison’s standard. However, individuals under 18 will still need a prescription to purchase nicotine vapes.

The intent behind the new laws is to regulate the sale of nicotine vapes more strictly while making them accessible for adults who choose to use them. Despite this, the Pharmacy Guild remains critical, highlighting the health risks associated with vaping and the added responsibility placed on pharmacists to manage these products safely.

As the implementation date approaches, the debate within the healthcare community and among the public is likely to intensify, raising questions about the balance between accessibility and safety in the regulation of nicotine vapes.

 

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Onsite Pharmacists – Just What the Doctor Ordered

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Onsite Pharmacists
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Onsite Pharmacists – Just What the Doctor Ordered

 

The Aged Care Onsite Pharmacist (ACOP) program aims to revolutionise medication delivery in residential facilities by placing trained professionals directly on-site.

Addressing Medication Mismanagement

The mismanagement of medications, inconsistent safety procedures, and low vaccination rates in aged care homes have long been controversial. Health authorities are urging providers to increase vaccine rates, as the lives of residents and communities are at risk. Despite these pleas, the Royal Australian College of General Practitioners reported that 97 aged care facilities had COVID-19 vaccination rates below 10%. Additionally, 706 facilities reported less than 50% of their residents vaccinated against COVID, with the lowest coverage in various states including New South Wales, Queensland, South Australia, Tasmania, Victoria, and Western Australia.

The Role of Onsite Pharmacists

The Aged Care Royal Commission identified medication delivery as a crucial area for improvement in aged care homes, recommending the employment of allied health practitioners, including pharmacists. Responding to this, the Federal Government has allocated $333.7 million to fund the ACOP program. This initiative enables residential aged care providers to engage pharmacists through local pharmacies or direct employment. These pharmacists will deliver personalised medications, manage frequent medication reviews, and administer antipsychotic drugs and vaccinations.

Goals of the ACOP Program

The ACOP aims to:

  • Improve medication use and safety in aged care homes, particularly the use of high-risk medications.
  • Ensure continuity in medication management through regular reviews and prompt issue resolution.
  • Provide easy access to pharmaceutical advice for residents and staff.
  • Integrate on-site pharmacists with the healthcare team, including local GPs, nurses, and community pharmacies.
  • Enhance understanding and response to individual resident needs.

Support from the Pharmacy Guild of Australia

The initiative has garnered support from the Pharmacy Guild of Australia, recognising the potential to elevate the role of pharmacies. This program enables pharmacists not only to deliver medications and dose administration aids but also to provide quality use of medicines within the facility. A Pharmacy Guild spokesperson highlighted the additional services pharmacists can offer, such as vaccinations, as they begin to practice to their full scope. This will create further opportunities for community pharmacies to become significant providers of healthcare services to aged care facilities.

Funding Model

The ACOP funding model is divided into two tiers:

  • Tier 1: Community pharmacies receive payments to engage with specific residential aged care facilities.
  • Tier 2: Residential aged care facilities can claim up to $138,282 per year for the full-time equivalent employment of an on-site pharmacist.

This government-funded initiative promises to improve medication management and overall healthcare in aged care facilities, ensuring better health outcomes for residents.

 

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Foods That Can Help Reduce or Prevent Joint Pain

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Minimally processed, whole foods That Can Help Reduce or Prevent Joint Pain
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Foods That Can Help Reduce or Prevent Joint Pain

 

Minimally processed, whole foods — including brightly coloured fruits and vegetables, healthy fats, and lean proteins — may help relieve inflammation and other symptoms that lead to joint pain. Inflammation is a common cause of joint pain, often associated with arthritis and other joint conditions. Eating foods that help reduce inflammation may improve joint pain and offer additional health benefits, such as improved heart health.

Can Diet Help Reduce Joint Pain?

Research indicates that diet can significantly impact joint health. A survey of 217 people with rheumatoid arthritis (RA) found that 24% reported their diet affected their symptoms. A 2023 study on osteoarthritis supports the idea that certain diet patterns can improve joint symptoms. Diets high in nuts, legumes, fruits, vegetables, and seafood, which contain anti-inflammatory properties like antioxidants and phytochemicals, may help reduce joint pain.

Beneficial Foods for Joint Pain

Incorporating anti-inflammatory foods into your diet can help reduce joint pain and slow disease activity. Beneficial foods include:

  • Nuts: Rich in healthy fats and antioxidants.
  • Legumes: High in fibre and protein, reducing inflammation.
  • Fruits and Vegetables: Packed with vitamins, minerals, and antioxidants.
  • Seafood: Especially fatty fish like salmon and mackerel, high in omega-3 fatty acids.

Foods to Avoid

To manage joint pain, limit or avoid processed foods, trans fats, and added sugars. A nutrient-rich diet can also help maintain a moderate weight, reducing strain on the joints.

Popular Diets for Joint Pain

The Mediterranean Diet

Emphasises fruits, vegetables, whole grains, legumes, and healthy fats, with moderate seafood and poultry, and limited dairy and red meat. Associated with reduced inflammation and improved joint health.

The DASH Diet

Includes fruits, vegetables, fish, poultry, nuts, whole grains, and low-fat dairy while restricting salt, sugar, fats, and red meat. May help improve and reduce the risk of gout, a type of arthritis that causes joint pain.

Conclusion

Incorporating a variety of nutrient-rich, anti-inflammatory foods into your diet can help manage and prevent joint pain. Following dietary patterns like the Mediterranean or DASH diets may offer comprehensive benefits for joint health and overall well-being.

 

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