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Northern Rivers Local News

From cancer patient to patient advocate

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DAVID Young, aged 64 from Byron Bay

From cancer patient to patient advocate

“We had a full life, running a B&B in Byron Bay and I was still working as an advertising photographer, so it took some time to get our heads around the devastating diagnosis.”

DAVID Young, aged 64 from Byron Bay, decided to follow doctor’s orders and started to have annual health checks from the age of 50, but after three years, his GP became concerned about his blood results and referred him to a haematologist.
In 2012 he was shocked to receive a diagnosis of Waldenström’s macroglobulinemia (WM), a rare type of non-Hodgkin’s lymphoma, and was told he only had two to six years to live and would need to start immediate intensive chemotherapy.
“My wife and I were knocked for six by the news and went on an emotional rollercoaster with our dreams of retirement, travel and growing old together smashed,” says Young.
“We had a full life, running a B&B in Byron Bay and I was still working as an advertising photographer, so it took some time to get our heads around the devastating diagnosis.
“I decided I needed to learn more about WM, so I spent a couple of days researching and discovered that the prognosis and treatment were not quite as dire as I had been told.”
At the time of diagnosis, he had no symptoms, but eventually he started to experience fatigue, anaemia, leg and foot cramps, and night sweats.
He started taking rituximab which helped with his symptoms for a few years, but then it started to wane. He continued his research and discovered a clinical trial for zanubrutinib (Brukinsa), which he enrolled in.
Within a couple of months his symptoms abated, and he has now been on zanubrutinib for four years and is “pretty close to remission”.
“I’m delighted that Brukinsa (zanubrutinib) has just received Therapeutic Goods Administration approval for the treatment of adult patients with Waldenström’s macroglobulinemia and also for adult patients with mantle cell lymphoma (MCL) – another type of non-Hodgkin’s lymphoma,” he says.
“Brukinsa has given me a life with very few side effects and is keeping me in remission. And as it’s a capsule, it’s non-invasive with no down time, unlike traditional treatment with intravenous chemotherapy and its well-known harsh side effects.
“Thanks to Brukinsa, I went from feeling sorry for myself to climbing Cradle Mountain in Tasmania, so I want other people to benefit from this targeted treatment that has given me so much,” he says.
On behalf of WMozzies, Young was delighted to be invited by the Pharmaceutical Benefits Advisory Committee (PBAC) to take part in a pilot program as consumer advocates in the Brukinsa PBAC decision process.
WM and MCL patients will have immediate free of charge access to Brukinsa through a BeiGene sponsored Pre-Reimbursement Access Program until such time that WM and MCL are listed for reimbursement on the Pharmaceutical Benefits Scheme.
In a first for the PBAC, BeiGene (who discovered Brukinsa) expect to enter a facilitated resolution pathway in order to seek a listing date for WM.
Young’s mantra for other cancer patients is to take charge of their life and to do their own research. He has been a cancer advocate since 2013 and is the team leader of WMozzies, a patient support organisation for WM.
He also works with The Cancer Council, NSW Cancer Institute, The Leukaemia Foundation and Cancer Voices NSW.
“I’m passionate about educating people about cancer and encouraging cancer patients to take responsibility for researching the latest information and treatments out there,” says Young.

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Gardening

The Enchanted World of Kids Cubby Houses

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Kids Cubby Houses

The Enchanted World of Kids Cubby Houses

 

Cubby houses, those quaint, imaginative structures nestled in backyards around the globe, are more than just play spaces for kids—they are sanctuaries of creativity, learning, and childhood memories. In this exploration of cubby houses, we delve into their charm, benefits for childhood development, design considerations, and tips for creating the ultimate backyard adventure.

Cubby Houses and Childhood Development

At first glance, a cubby house might appear as a simple wooden structure tucked into a garden corner. Yet, to children, it represents a boundless world of fantasy and freedom. These mini-homes are the stages for imaginative play, where kids can be pirates one day and bold explorers the next. This imaginative play is crucial for cognitive development, raising creativity, problem-solving skills, and independence.

Cubby houses also serve as a child’s first look into ownership, giving them a sense of responsibility and pride in their space. Decorating and caring for their cubby, children learn about organisation and personal responsibility in a fun, engaging way.

The Design Philosophy Behind Cubby Houses

When designing a cubby house, the goal is to balance safety, creativity, and environmental harmony. Modern cubby houses range from simplistic designs to elaborate mini-mansions, equipped with verandas, slides, and even climbing walls. However, the essence of a cubby house is not in its complexity but in its ability to inspire and adapt to a child’s imagination.

Eco-friendly materials and sustainability are becoming increasingly important in cubby house construction. Recycled wood, non-toxic paints, and solar-powered lights are just a few options for parents looking to minimise environmental impact. Moreover, incorporating natural elements like sandpits, water play areas, and gardens can further connect children with nature, enhancing their learning and sensory development.

Incorporating Education into Play

The educational potential of cubby houses is vast. By integrating elements like chalkboards, weather stations, or even simple tools for gardening, children can learn valuable lessons about the world around them. These features encourage exploration and curiosity, key drivers of lifelong learning.

Cubby houses are also excellent tools for social development. They can be hubs for social interaction where kids learn to negotiate, share, and work together. Whether it’s deciding on the day’s play theme or resolving a dispute about who gets to be the captain of the ship, these experiences are invaluable in developing empathy and social skills.

Creating Your Child’s Dream Cubby House

Building a cubby house can be a wonderful project for the whole family.

Here are some tips to get you started:

  • Safety First: Ensure the structure is stable and materials are safe. Smooth out any sharp edges, and if the house is elevated, secure railings and a sturdy ladder.
  • Let Creativity Lead: Involve your child in the design process. Their imaginative ideas can lead to unique features that make the cubby house truly theirs.
  • Consider the Location: Place the cubby house in a spot that’s easily visible from the house but also immersed in the garden. Proximity to trees, flowers, and shrubs can enhance the sense of adventure.
  • Think Long-Term: Children grow quickly, so consider a design that can evolve with them. Modular cubby houses that allow for expansions or modifications can extend the life of the playhouse.

The Community Aspect of Cubby Houses

Cubby houses have the power to bring communities together. Neighbourhood cubby house competitions or shared community garden cubbies can foster a sense of togetherness and shared pride. These initiatives not only create communal spaces for play but also teach children the value of community and collective care for shared spaces.

The Cubby Houses Await!

Cubby houses represent a world of wonder for kids, offering endless possibilities for play, learning, and growth. They are microcosms of creativity, where the simplest structures can become castles, spaceships, or secret headquarters in the eyes of a child.

Beyond their immediate joy and entertainment value, cubby houses play a crucial role in childhood development, encouraging independence, social skills, and a connection with nature.

As we design and build these special spaces, we’re reminded of the importance of play in a child’s life—not just for fun, but as a fundamental part of learning about the world and themselves.

In the end, the greatest gift we can give our children is the space and freedom to explore, imagine, and dream. And perhaps, in the process of creating these magical garden retreats, we rediscover a bit of our own childhood wonder along the way.

 

For more gardening news, click here.

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Casino Beef Week

Embrace Country Life at Casino Beef Week’s MJ Smith Group Breakfast with the Butchers

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Embrace Country Life at Casino Beef Week’s MJ Smith Group Breakfast with the Butchers

Casino, 8/4/2024 – Casino Beef Week is excited to announce an extraordinary day of community spirit and celebration at the MJ Smith Group Breakfast with the Butchers Presented by ZZZFM. This year’s event is set to surpass all expectations, encapsulating the essence of country life in a morning filled with fun, food, and festivity.

Thanks to the generous support of The MJ Smith Group, our 2024 Major Sponsor, the annual Free Community Breakfast will offer attendees a delightful taste of the local life with complimentary sausage or steak sandwiches, chocolate milk, and fresh fruit, generously donated by Woolworths Casino. This partnership exemplifies The MJ Smith Group’s deep commitment to the local community, showcasing a shared passion for uniting and enriching our region.

Brody Lisha, President of Casino Beef Week, expressed his enthusiasm about the event: “We are overjoyed to have The MJ Smith Group as our Major Sponsor this year. Their dedication to the community mirrors our mission to celebrate our country life and bring people together. This event is more than just a breakfast; it’s a showcase of what makes our community so vibrant and unique.”

Casino NSW_Breakfast_with_the_Butchers

Casino Beef Week is excited to announce an extraordinary day of community spirit and celebration at the MJ Smith Group Breakfast with the Butchers Presented by ZZZFM.

The event will feature an impressive display of machinery, allowing attendees to witness the remarkable work of The MJ Smith Group firsthand. “Seeing the machinery up close is a testament to the innovation and hard work that drives our local industries. It’s an honour to highlight this aspect of our community at the event,” said Lisha.

Adding to the excitement, the annual Richmond Dairies Cow Pat Lotto, presented by Bently Community Preschool, returns with a larger prize pool thanks to Richmond Dairies and Macdonalds Pharmacy. “The Cow Pat Lotto is a tradition that everyone looks forward to. It’s a fun, quirky way to engage with the community while supporting a great cause,” Lisha remarked.

Butchers from the region will compete in the Verto Sausage Competition, aiming for the titles of Best Beef Sausage and Best Gourmet Sausage. Lisha commented, “Our local butchers are incredibly talented, and this competition is a fantastic way to showcase their skills and the quality of our local produce.”

The day will also feature live entertainment from Sam Handford and the grand finale of the CiCom Busking Championships on the Jack Links Stage. “The talent we have in our community is astounding, and the Jack Links Stage is the perfect platform to showcase it. It’s going to be an unforgettable day,” Lisha added.

Casino Beef Week invites everyone to join in celebrating our country life, embodying the community spirit that makes our region so special. Don’t miss this outstanding day of free food, fantastic entertainment, and family-friendly fun.

The Breakfast will be lived streamed via ZZZFM and 2LM.

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Entertainment

Earth Frequency Festival 2024

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Earth Frequency Festival 2024

Earth Frequency Festival 2024

 

Earth Frequency Festival is a music, arts, lifestyle and environmental festival based in South-East Queensland, Australia, with a strong focus on arts, education, healing and community spirit.

While drawing from many cultural niches such as transformational festival, tribal gathering, doof and boutique festival, the aim of Earth Frequency Festival is to go beyond these traditional tags and to exist as a multi-faceted gathering focused broadly on creativity, connection, intention and inspiration.

From it’s origins as a small landcare party in 2005, Earth Frequency has now become one of Australia’s foremost transformational gatherings.

At Earth Frequency, you can always expect an amazing mixture of live and electronic music, performance, visionary art, workshops and lectures, a family and kids space, a fantastic food and markets area, and of course a positive community vibe.

Our aim is to create nothing short of a life changing, transformative experience! We aim to provide a meeting place – people from many different backgrounds, ages and walks of life come together with the shared interests of music, nature, technology, culture and peace.

Earth Frequency Festival is held each year at Ivory’s Rock Conventions and Events in Peak Crossing. Ivory’s Rock is a beautiful outdoor venue with top notch facilities, comfortable campgrounds, and it is conveniently located under an hour from Brisbane and just 20 minutes from Ipswich.

Nurtured by the setting of the beautiful Australian outdoors, we gather together once a year to celebrate life with music, art and other creative forms, and to educate, connect, heal and inspire.

EVENT DETAILS:

  • When: May 3-6
  • Where: Ivory’s Rock Conventions and Events, Peak Crossing.
  • Price: From $280
  • Tickets: www.earthfrequency.com.au

 

For more entertainment news, click here.

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