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Raising Awareness of Loneliness: The Role of Social Connections in Health and Wellbeing

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Raising Awareness of Loneliness: The Role of Social Connections in Health and Wellbeing

 

As we approach Loneliness Awareness Week (5-11 August), it is crucial to highlight the significance of social connections for our health and wellbeing.

Loneliness is recognized as a major social challenge today. Research underscores that humans are inherently social beings, needing connection not only for support but also to find purpose and meaning in life.

Despite this, 1 in 4 people suffer from problematic loneliness.

Loneliness can be understood as the disparity between the social connections we desire and those we actually have. Although each person’s experience of loneliness is unique, it universally poses a significant risk for chronic health issues such as cardiovascular disease, hypertension, obesity, addiction, substance abuse, anxiety, and depression.

Researcher Julianne Holt-Lunstad found that loneliness has a more detrimental impact on our health than smoking 15 cigarettes a day. Despite social connections being a key predictor of longevity, most people undervalue them as a factor in managing their health.

This highlights the importance of initiatives like Loneliness Awareness Week and programs such as Healthy Me, Healthy Community. Healthy North Coast’s social prescribing program in Port Macquarie is particularly vital in addressing some of the region’s most common chronic conditions.

Understanding Social Prescribing

Social prescribing is a globally recognized, modern approach to healthcare where health professionals consider social determinants of health as crucial to improving health outcomes, addressing the root causes rather than just symptoms.

Patients, where appropriate, are referred to trained link workers who focus on ‘what matters’ to the individual, supporting them in connecting with activities, groups, and services in a person-centred approach.

Global studies indicate that social prescribing significantly improves individual health outcomes, reduces health service usage, and fosters stronger, more connected communities.

Australia’s Primary Health Care 10-Year Plan includes social prescribing as a key strategy to enhance access to appropriate care for those at risk of poorer health outcomes. Currently, there are over 20 social prescribing programs operating throughout Australia.

Understanding Loneliness: From Emotional Distress to Public Health Crisis

Loneliness is a distressing feeling stemming from the perception that one’s social needs are unmet. Traditionally viewed as an emotional and mental health concern, it was primarily studied by psychologists, philosophers, and poets. However, in recent years, health researchers and clinicians across various specialties have recognized loneliness as a social determinant of health—similar to economic stability or access to quality education—that significantly influences overall health outcomes. The COVID-19 pandemic, with its social distancing guidelines, has exacerbated what is now often described as an epidemic and a public health crisis.

Interestingly, not all loneliness is detrimental. According to Liz Necka, a program director in the Division of Behavioural and Social Research at the US National Institute on Aging, about 20% of the population experiences a normal, even beneficial level of loneliness. Necka explains that loneliness can motivate individuals to seek social connections. The real issue arises when loneliness becomes chronic.

Studies in neuroscience and research on isolated animals suggest that unaddressed loneliness triggers an immune response in the body, leading to cycles of inflammation that can cause various illnesses, including depression, anxiety, high blood pressure, diabetes, stroke, and heart disease. This state of hypervigilance is also associated with personality changes and impaired decision-making, increasing the risk of cognitive decline and dementia. Research shows that lonely individuals face a 26% higher risk of premature death, a rate comparable to that of smoking.

Despite these concerning correlations, new evidence suggests potential benefits of even chronic loneliness. Recent neurological research has found that lonely individuals have bulkier and more strongly wired brain regions associated with reminiscing, imagining, and self-reflection.

The complexity of loneliness makes it difficult to measure, and much remains unknown about its precise impact on health and mortality. However, the surge in research, particularly since the pandemic, reflects growing concerns about loneliness globally.

The Prevalence of Loneliness

Research indicates that 15-30% of the general population is chronically lonely. Before the pandemic, about 19% of US adults over 55 were “frequently” lonely, according to the Health and Retirement Study (HRS) conducted by the University of Michigan. Contrary to narratives suggesting increasing loneliness among seniors, James Raymo, a demographer at Princeton University, found that the prevalence of frequent loneliness among older adults in the US remained relatively stable from 1998 to 2016.

Polling data suggests a spike in loneliness among older adults during the pandemic, with younger people experiencing even higher rates of loneliness due to social distancing. While loneliness affects all life stages, older adults are more susceptible to its adverse health outcomes, says Necka. Interestingly, older adults have shown greater resilience to social distancing than younger adults. With the easing of social distancing guidelines, loneliness levels appear to be returning to pre-pandemic norms.

Research Challenges and Future Directions

Loneliness is complex and challenging to measure, partly due to the lack of uniformly accepted terminology. Social isolation—defined as an objective lack of social contacts—is often conflated with loneliness, yet these are distinct concepts. For example, a person can be content with little social contact or feel lonely despite numerous social ties if those connections lack meaning.

Additionally, while loneliness is linked to serious health conditions, these conditions can also increase the risk of loneliness, creating a vicious cycle for patients and posing research challenges. Researchers often rely on survey data to study loneliness, but the method of survey administration (phone vs. written) can influence results.

Certain population segments are more at risk of chronic loneliness. People living in poverty, those with cognitive or mobility impairments, and those with sensory impairments (hearing and vision loss) are at higher risk. A 2020 report by the National Academies of Science, Engineering, and Medicine also highlights immigrants and LGBTQ+ individuals as vulnerable groups.

Medical professionals are increasingly recognising their role in addressing loneliness. For many chronically lonely older adults, a brief conversation with a doctor may be one of the few discussions about their health and wellbeing. Dr. Ashwin Kotwal, a researcher and palliative care physician at the University of California, San Francisco, notes that the pandemic has helped destigmatise loneliness, prompting more clinicians to inquire about patients’ social wellbeing. However, systemic changes are needed to promote social prescribing and secure funding for social programs that significantly impact quality of life.

Broadening Interventions

Because loneliness is experienced differently by individuals, no single intervention is universally effective. Necka compares loneliness to setting a thermostat, where personal preferences for social interactions vary. Before the pandemic, interventions often focused on developing cognitive skills for socialising. More recent approaches have seen promising results from enrolling lonely individuals in volunteer programs, although these findings are yet to be published. Training social support personnel, such as Meals on Wheels delivery drivers, in empathetic listening has also shown potential as a scalable intervention.

The pandemic has pushed many older adults to adopt technologies like videoconferencing to stay connected, leading to increased emphasis on digital solutions. Studies involving direct social contact via videoconferencing and the use of robot companions have shown promise in reducing feelings of loneliness and anxiety.

There is a growing recognition of the need for holistic approaches involving various disciplines and stakeholders. Experts from psychology, public transportation, and the arts have long studied loneliness and its relief methods. Amy McLennan, a senior fellow at Australian National University, cautions against framing loneliness solely as a medical issue, which might stifle broader collaboration. McLennan emphasises the importance of viewing loneliness as a multi-faceted problem requiring diverse solutions.

Dr. Kotwal is optimistic that the pandemic and the increasing volume of loneliness-related research will drive systemic changes in healthcare. He advocates for reallocating some medical care funds to social care to alleviate chronic loneliness effectively. This shift, he believes, will enable clinicians to play a more significant role in improving patients’ social wellbeing.

Recent studies have examined loneliness prevalence, the link between low human contact and poor health outcomes, and the effectiveness of various interventions. Below is a curated list of seven peer-reviewed studies on loneliness and social isolation, highlighting their key findings and insights from some of the authors.

 

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Alarming Data Reveals Widespread Fears of Discrimination Among Australians Facing Cancer Treatment

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Alarming Data Reveals Widespread Fears of Discrimination Among Australians Facing Cancer Treatment

 

A significant number of Australians are deeply concerned that factors such as their location, age, gender, sexual orientation, income, or the language they speak at home could adversely affect their cancer treatment and survival chances. This is according to new research commissioned by the Leukaemia Foundation, which highlights the pervasive fear of discrimination in the healthcare system.

The YouGov survey revealed that seven in ten Australians worry that these personal characteristics may impact their ability to receive effective cancer treatment. Millennials emerged as the most concerned, with 71% expressing fears, followed by Baby Boomers at 63% and Generation X at 62%.

With one in twelve Australians expected to be diagnosed with blood cancer—such as leukaemia, myeloma, or lymphoma—in their lifetime, the Leukaemia Foundation’s CEO, Chris Tanti, described the findings as deeply troubling. He emphasised that these fears are rooted in the broader issue of health inequity, which disproportionately affects marginalised communities.

“These latest results underscore the urgent need for greater awareness and action to create a healthcare environment that is safe, welcoming, and inclusive for everyone,” Tanti said. “We know there is a persistent and troubling cancer health divide across Australia, particularly impacting those living in regional areas, First Nations peoples, culturally and linguistically diverse (CALD) communities, and LGBTQIA+ individuals. These groups face significant barriers in accessing timely diagnoses and the best available treatments.”

The survey comes at a time when blood cancer remains one of Australia’s most deadly and prevalent diseases. Every day, 53 Australians are diagnosed with blood cancer—equating to one person every 27 minutes—and 17 people lose their lives to the disease.

Tanti further noted the geographical disparities in cancer outcomes, with 41% of Australians diagnosed with blood cancer living in regional, rural, or remote areas. These patients are statistically less likely to survive five years beyond their diagnosis compared to those in major cities, due in part to the challenges of accessing specialized care.

CALD communities face additional hurdles, particularly when English is not the primary language spoken at home. This can significantly hinder their ability to understand health information and navigate the healthcare system. Meanwhile, LGBTQIA+ individuals often experience social isolation and may delay seeking medical care due to fear of discrimination or distrust in the healthcare system.

“These issues are substantial, and it’s no surprise that many Australians are fearful about being diagnosed with cancer and their chances of survival,” Tanti said.

In response to these findings, the Leukaemia Foundation has launched a new campaign, A Fair Go, aimed at addressing the fear and uncertainty surrounding blood cancer. The initiative seeks to ensure that every Australian, regardless of their background, has the knowledge, resources, and support needed to confront blood cancer.

The campaign will also focus on supporting healthcare professionals by developing new resources and information tailored to priority population groups. Additionally, the Foundation will spearhead new initiatives and research programs to tackle the specific challenges these groups face.

“Where someone lives, their age, gender, sexual orientation, income, cultural background, or language spoken at home should not determine their chances of surviving cancer,” Tanti asserted. “It is unacceptable that seven in ten Australians live with this fear. We are committed to addressing the issue of inequity head-on, ensuring that every Australian with blood cancer has a fair go when it comes to treatment and care.”

As Blood Cancer Month approaches this September, the Leukaemia Foundation encourages all Australians affected by blood cancer, as well as those interested in learning more, to visit the Blood Cancer page on their website

 

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Aged Care Providers Urged to Address Unique Needs of Stolen Generations Survivors with Dementia

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Aged Care Providers Urged to Address Unique Needs of Stolen Generations Survivors with Dementia

 

As the first generation of Stolen Generations Survivors reaches old age, many now grappling with dementia, leading experts are calling on aged care providers to better understand and accommodate their unique needs. Dr. Tiffany McComsey and Harpreet Kalsi-Smith, both from the Kinchela Boys Home Aboriginal Corporation, will highlight these concerns at the upcoming International Dementia Conference in Sydney, emphasising the importance of trauma-informed care.

With approximately 17,000 Stolen Generations Survivors aged 50 and over, many are now frail and particularly vulnerable to dementia—Aboriginal and Torres Strait Islander people are three to five times more likely to develop the condition than non-Indigenous Australians. Dr. McComsey expressed concern that many aged care facilities lack an understanding of the deep trauma these individuals have experienced, which profoundly impacts their dementia journey.

One innovative approach proposed by Dr. McComsey and Ms. Kalsi-Smith is the use of life story posters. These posters, which would be created with the input of the survivors and their trusted companions, would provide a visual and narrative overview of the person’s life, including their likes, dislikes, and strategies to de-escalate potential tensions. The posters serve as a constant reminder to care staff of the individual’s background and the trauma they have endured, helping to create a more supportive and understanding environment.

Ms. Kalsi-Smith underscored the importance of these life story posters, especially for individuals with dementia who often struggle with communication and memory. “Creating a life story is a useful way to record important information about Stolen Generations Survivors and help others understand and relate to them in a supportive way,” she said.

The Kinchela Boys Home, where many of these survivors spent their childhoods, was a site of intense cultural and psychological abuse. The boys, now referred to as “uncles,” were stripped of their identities, forced to conform to an alien culture, and suffered significant trauma. Of the 600 boys who passed through Kinchela, only 50 are alive today, with seven currently living with dementia.

Aged care providers are encouraged not only to adopt the life story poster concept but also to engage in comprehensive training about the legacy of the Stolen Generations. This includes participating in truth-telling processes and ensuring all staff are equipped with trauma-informed care practices.

Ms. Kalsi-Smith highlighted the deep fear many Stolen Generations Survivors feel about entering aged care facilities, which they often associate with the restrictive environments of their childhood. This fear is illustrated by Uncle Colin Davis, a 76-year-old Kinchela Survivor recently diagnosed with dementia, who has expressed a strong desire to avoid aged care homes altogether.

Uncle Colin’s wife, Aunty Rita Davis, voiced concerns that the available aged care options near their home on the NSW South Coast would not meet her husband’s needs. “For him, it would be like the restrictions he had growing up all over again. Once you put restrictions on him, you never know what he’ll do,” she said.

Dementia Support Australia (DSA), which has provided tailored support to 50,000 people since 2016, emphasises the importance of cultural awareness and trauma-informed care training for aged care staff. DSA Head of Professional Services Marie Alford stressed that all aged care services should understand the triggers of Behavioural and Psychological Symptoms of Dementia (BPSD) in Stolen Generations Survivors and know how to safely de-escalate them.

The upcoming International Dementia Conference, hosted by The Dementia Centre, will bring these critical issues to the forefront, as aged care providers and policymakers gather to discuss the future of dementia care in Australia. As the needs of Stolen Generations Survivors become more urgent, it is clear that a tailored, culturally sensitive approach is essential for their care and well-being.

 

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Lismore Confirmed as One of Two Regional Drug Summit Forum Locations

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Lismore Confirmed as One of Two Regional Drug Summit Forum Locations

 

Robert Heyward

Regional Health Minister Ryan Park has confirmed that Lismore will host one of the NSW Government’s two Drug Summit regional forums on Monday, 4 November. These regional forums are designed to ensure that the unique experiences of communities in regional NSW are reflected in the larger discussions at the Drug Summit.

The summit will bring together a diverse range of participants, including medical experts, police, individuals with lived experience, drug user organizations, families, and service providers. These forums aim to build consensus on how NSW should address drug use and the associated harms.

Minister Park also announced that former NSW Deputy Premier Carmel Tebbutt and former NSW Leader of the Opposition John Brogden will co-chair the NSW Drug Summit. The Co-Chairs will collaborate with attendees to develop and prioritize solutions focused on improving community health, safety, justice, and integrated social support systems.

Minister for Health Ryan Park said:

  • “Bringing the summit to regional areas like Lismore is essential because drug use impacts communities in different ways.”
  • “It’s important that Lismore’s experiences with illicit drug use are reflected in the summit’s deliberations.”
  • “Janelle [Saffin] has been a strong advocate for her community, and it’s fitting that we can return to hear from Lismore in 2024.”

Member for Lismore Janelle Saffin added:

  • “I’m thrilled that Lismore will be hosting one of the two regional forums of the Drug Summit.”
  • “We have unique challenges here, and I am determined that Lismore’s voice will be heard in this statewide conversation.”
  • “In 1999, I participated in a successful Drug Summit, and I am excited to bring forward local perspectives once again in 2024.”

The Lismore forum will be an opportunity for local voices to contribute to a broader statewide effort aimed at addressing drug use and improving public health outcomes across NSW.

 

For more local Lismore news, click here.

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