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Alarming Data Reveals Widespread Fears of Discrimination Among Australians Facing Cancer Treatment

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Alarming Data Reveals Widespread Fears of Discrimination Among Australians Facing Cancer Treatment

 

A significant number of Australians are deeply concerned that factors such as their location, age, gender, sexual orientation, income, or the language they speak at home could adversely affect their cancer treatment and survival chances. This is according to new research commissioned by the Leukaemia Foundation, which highlights the pervasive fear of discrimination in the healthcare system.

The YouGov survey revealed that seven in ten Australians worry that these personal characteristics may impact their ability to receive effective cancer treatment. Millennials emerged as the most concerned, with 71% expressing fears, followed by Baby Boomers at 63% and Generation X at 62%.

With one in twelve Australians expected to be diagnosed with blood cancer—such as leukaemia, myeloma, or lymphoma—in their lifetime, the Leukaemia Foundation’s CEO, Chris Tanti, described the findings as deeply troubling. He emphasised that these fears are rooted in the broader issue of health inequity, which disproportionately affects marginalised communities.

“These latest results underscore the urgent need for greater awareness and action to create a healthcare environment that is safe, welcoming, and inclusive for everyone,” Tanti said. “We know there is a persistent and troubling cancer health divide across Australia, particularly impacting those living in regional areas, First Nations peoples, culturally and linguistically diverse (CALD) communities, and LGBTQIA+ individuals. These groups face significant barriers in accessing timely diagnoses and the best available treatments.”

The survey comes at a time when blood cancer remains one of Australia’s most deadly and prevalent diseases. Every day, 53 Australians are diagnosed with blood cancer—equating to one person every 27 minutes—and 17 people lose their lives to the disease.

Tanti further noted the geographical disparities in cancer outcomes, with 41% of Australians diagnosed with blood cancer living in regional, rural, or remote areas. These patients are statistically less likely to survive five years beyond their diagnosis compared to those in major cities, due in part to the challenges of accessing specialized care.

CALD communities face additional hurdles, particularly when English is not the primary language spoken at home. This can significantly hinder their ability to understand health information and navigate the healthcare system. Meanwhile, LGBTQIA+ individuals often experience social isolation and may delay seeking medical care due to fear of discrimination or distrust in the healthcare system.

“These issues are substantial, and it’s no surprise that many Australians are fearful about being diagnosed with cancer and their chances of survival,” Tanti said.

In response to these findings, the Leukaemia Foundation has launched a new campaign, A Fair Go, aimed at addressing the fear and uncertainty surrounding blood cancer. The initiative seeks to ensure that every Australian, regardless of their background, has the knowledge, resources, and support needed to confront blood cancer.

The campaign will also focus on supporting healthcare professionals by developing new resources and information tailored to priority population groups. Additionally, the Foundation will spearhead new initiatives and research programs to tackle the specific challenges these groups face.

“Where someone lives, their age, gender, sexual orientation, income, cultural background, or language spoken at home should not determine their chances of surviving cancer,” Tanti asserted. “It is unacceptable that seven in ten Australians live with this fear. We are committed to addressing the issue of inequity head-on, ensuring that every Australian with blood cancer has a fair go when it comes to treatment and care.”

As Blood Cancer Month approaches this September, the Leukaemia Foundation encourages all Australians affected by blood cancer, as well as those interested in learning more, to visit the Blood Cancer page on their website

 

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How AI is Empowering People with Disability to Achieve Their Goals

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How AI is Empowering People with Disability to Achieve Their Goals

 

By Robert Heyward

In a world increasingly dominated by digital visuals, images, and videos, advancements in Artificial Intelligence (AI) are helping bridge accessibility gaps for the more than 453,000 Australians living with vision impairments. Though AI is still evolving, its early applications are already making significant impacts, particularly for people with disabilities who find it an empowering tool for independence and career development.

John Zambelli, who has a vision impairment, exemplifies this impact. A Supported Employee at Summerland Farm in the Ballina-Byron hinterland, John leverages AI technology to enhance both his professional and personal life. “I use AI to assist me at work, and it’s amazing,” John shares. “When doing data entry, I can snap a photo of a document, and the AI program extracts the information I need, like the invoice number, date, or total, and reads it to me. It’s faster and less straining on my eyes.”

Over the years, John has experimented with various technologies, yet AI and smartphone apps have proven to be the most accessible and reliable. His favorited, the ‘Seeing AI’ app, has transformed tasks both at work and while out in the community. “If I need to read a menu or sign, I simply take a photo, and it reads it aloud. I’ve used the app for years, and it keeps improving, making my life easier.”

When asked if he would recommend technology to others with low vision, John said, “I always encourage others to explore new tech. It has been an invaluable tool in my life, providing support in ways I never imagined.”

Celebrating nearly 14 years at Summerland Farm, operated by Aruma—one of Australia’s largest disability service providers and charities—John works with more than 100 other Supported Employees, all contributing to what he proudly calls the “farm with heart.” Reflecting on his journey, John remarked, “When I started, I mostly handled reception duties, but now I work on a range of technology and IT tasks. Technology, especially AI, has been a game-changer, helping me build a fulfilling career.”

John’s experience is a testament to how AI and assistive technology can empower people with disabilities, opening doors to independence and meaningful employment. As AI continues to evolve, the potential for more inclusive and accessible opportunities grows, offering individuals like John the chance to achieve their goals and thrive in both work and life.

 

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Experts Shine a Spotlight on ‘Dyslexia for Maths’

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Experts Shine a Spotlight on ‘Dyslexia for Maths’

 

By Ian Roberts

Dyscalculia: The Overlooked Learning Disability

While many Australians are familiar with dyslexia, fewer have heard of dyscalculia, a learning disability that impacts an individual’s ability to process numbers and mathematical concepts. This condition, which affects up to one in seven Australians, disrupts areas of the brain associated with numerical understanding, often going undiagnosed or misunderstood.

Dyscalculia can significantly affect an individual’s ability to perform basic arithmetic, comprehend number sequences, and understand mathematical symbols. Like dyslexia, its severity varies widely, from mild challenges to profound difficulties.

A Personal Perspective

Tasmanian artist Alfie Barker is one of many living with dyscalculia. He explains how it affects his everyday life: “People find it odd that I can’t even visualise two centimetres. It impacts my social interactions in ways most wouldn’t imagine.”

Similarly, Chris Long, from Queensland, shared his struggles: “I’ll be looking at the number four, but my brain registers it as a six. I also have trouble interpreting tables or graphs—it’s hard to connect values to numbers.”

The Science and Stigma of Dyscalculia

Despite its prevalence, dyscalculia remains under-researched and often misunderstood. Jodi Clements, President of the Australian Dyslexia Association (ADA), highlighted the broader consequences of undiagnosed learning disabilities, which can persist from childhood into adulthood. “Unidentified dyscalculia eroded my confidence in school,” she said. “Even today, there are no clear guidelines for screening, and public awareness remains limited.”

Neuroscientist Brian Butterworth, who has spent two decades studying dyscalculia, emphasized that it is distinct from simply being “bad at maths.” He explained: “Even the simplest numerical tasks can be challenging for someone with dyscalculia. For instance, if you show them four dots on a screen, they may need to stop and count them instead of instantly recognising the quantity.”

Understanding Dyscalculia

What is Dyscalculia?

Dyscalculia is a lifelong condition that often begins in childhood, although it may go unnoticed for years. Many individuals develop coping mechanisms or avoid situations involving numbers, delaying diagnosis well into adulthood—or even old age.

People with dyscalculia may struggle with:

  • Understanding numbers and their relationships.
  • Performing basic arithmetic (addition, subtraction, multiplication, division).
  • Estimating quantities or grasping concepts of time and money.
  • Following multi-step problem-solving sequences.
  • Retaining mathematical facts, such as multiplication tables.

Causes of Dyscalculia

While research is ongoing, potential causes include:

  • Genetics: The condition often runs in families.
  • Brain Development: Atypical neurological development may play a role.
  • Environmental Factors: Prenatal exposure to toxins or malnutrition may increase risk.
  • Neurological Injury: Children who experience brain trauma are more susceptible.

Although dyscalculia is increasingly diagnosed in school-aged children, adults often remain undiagnosed.

Overcoming Dyscalculia

Author and academic Paul Moorcraft didn’t confront his dyscalculia until his 50s. In his memoir, It Just Doesn’t Add Up, he coined the phrase: “Just because you can’t count doesn’t mean you don’t count.” Reflecting on his school years, he shared:
“Maths teachers would throw chalk dusters at me. I was in detention daily, struggling to keep up. Mental arithmetic felt like facing a firing squad. As an adult, I’d discreetly count on my fingers under the table. But I found success—I’ve written 50 books.”

Raising Awareness

As experts like Brian Butterworth and Jodi Clements call for better screening tools and public education, it’s clear that dyscalculia deserves greater attention. With increased awareness and support, individuals with dyscalculia can navigate their challenges and unlock their full potential.

 

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NSW Melanoma Hotspot Map Unveils High-Risk Areas

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NSW Melanoma Hotspot Map Unveils High-Risk Areas

 

By Robert Heyward

The Cancer Institute NSW has released a new melanoma hotspot map, highlighting regions with the highest melanoma rates in the state. According to the data, local government areas (LGAs) of Ballina, Lismore, Byron, Clarence Valley, and Coffs Harbour lead with the most cases, with nearly 350 diagnoses anticipated across these areas in 2024.

Rounding out the top 10 are Sutherland Shire, Port Macquarie-Hastings, Tweed, Kempsey, and Richmond Valley. Meanwhile, Mosman, Mid-Western Regional, Shoalhaven, Cessnock, and Wagga Wagga LGAs have entered the top 25.

Melanoma is one of the most common cancers affecting young Australians and ranks as the third most diagnosed cancer in NSW, with over 5,000 new cases projected statewide this year. As the deadliest form of skin cancer, melanoma is expected to claim the lives of nearly 500 people in NSW in 2024.

While most cases are due to UV overexposure, this type of skin cancer can largely be prevented with proper sun protection. The Cancer Institute NSW, under its 2023–2030 Skin Cancer Prevention Strategy, is working to reduce skin cancer rates through various initiatives, including the “If You Could See UV” campaign. This award-winning campaign, which has proven effective in inspiring skin protection among young adults, is being relaunched this summer with geo-targeted UV alerts and outdoor advertising, especially in high-exposure areas frequented by young people.

To guard against UV radiation, the Cancer Institute NSW advocates for these essential steps before heading outdoors:

  1. Slip on protective clothing
  2. Slop on SPF50+ sunscreen, applied 20 minutes before sun exposure and reapplied every two hours
  3. Slap on a wide-brimmed hat
  4. Seek shade
  5. Slide on sunglasses

NSW’s Top 25 Melanoma-Prone LGAs:

  1. Ballina
  2. Lismore
  3. Byron
  4. Clarence Valley
  5. Coffs Harbour
  6. Sutherland Shire
  7. Port Macquarie-Hastings
  8. Tweed
  9. Kempsey
  10. Richmond Valley
  11. Nambucca Valley
  12. Kiama
  13. Port Stephens
  14. Bathurst Regional
  15. Mid-Coast
  16. Lake Macquarie
  17. Mosman
  18. Mid-Western Regional
  19. Northern Beaches
  20. Shoalhaven
  21. Cessnock
  22. Wagga Wagga
  23. Central Coast
  24. Wingecarribee
  25. Newcastle

For additional resources on skin cancer prevention, visit the Cancer Institute NSW website.

Health Minister Ryan Park commented:
“This melanoma hotspot map is a critical reminder to practice sun safety, especially as summer approaches. While melanoma cases are highest in regional areas, everyone in NSW faces the risk of skin cancer. Given Australia’s global ranking in skin cancer rates, we all have a responsibility to follow protective measures to mitigate this deadly disease.”

Member for Wakehurst Michael Regan shared:
“Here on the Northern Beaches, outdoor activities are part of life. However, enjoying the sun safely is essential. I lost my father to melanoma, and I understand the need for prevention. Sun safety starts with each of us embracing and promoting a sun-smart culture. Slip, slop, slap, seek, and slide should be a daily routine.”

NSW Chief Cancer Officer, Professor Tracey O’Brien AM, stated:
“Two in three Australians will develop skin cancer in their lifetime. Consistent protection from UV exposure, starting young and continuing into adulthood, is essential to reducing risk. Even short periods in the sun without protection can be dangerous. Whether it’s a beach day or running errands, I urge everyone to practice sun safety.”

Personal stories highlight the risks and importance of sun protection:

  • Anne Gately, a melanoma survivor, emphasised the need for community responsibility in sun protection, saying, “Every bit of UV exposure contributes to cumulative damage, whether you feel it or not.”
  • Sonia Knight, currently undergoing immunotherapy for melanoma recurrence, stressed, “Tanning isn’t worth the risk. My daughters never leave the house without sunscreen. I encourage others to lean on resources like Canteen and Melanoma Patients Australia for support.”

This comprehensive approach to melanoma awareness and prevention aims to foster a culture of sun safety across NSW.

 

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